Back home after two days in Portland for my three week appointment with the research doctors. It was 5+ hours mainly caused by the fact that it took three very experienced nurses to find a vein from which they could draw blood. We all decided that it would be a good thing if I got a port so that surgery is scheduled for October.
I seem to be holding my own on the lower dosage of the drug. Funny thing is that on the higher dosage, the rash and swelling involved most of my body except for my lower legs. Now after being off the drug for a week and then starting on the lower dosage, my lower legs are swollen and totally covered with rash but the rest of my body only has a mild rash. Strange...
Decided that my mantra for now should be "Manage gracefully!"
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Keep the chin up! The port will make it much easier although drinking lots of water just before the blood draw does help.
ReplyDeleteLots of love,
Susie
Since I spoke with you Monday evening as the rash on your lower legs was developing, I'm especially glad to hear that it didn't pursue upward creep.
ReplyDelete"Manage gracefully!" -- I like that ... and will try to remember for myself. "Grace" was a word that Skip brought to my consciousness (and which I can't muster as often as I'd like).
Hugs, Jean