Applause and tears

As I left the hospital today the whole staff of the ward were standing by the doors cheering and giving me hugs and congratulating me on my accomplishment of completing 6 cycles of IL-2. I was so choked up that I really couldn't express my deep appreciation for their exceptional care. That sense that each one of the staff cared deeply about me and my success helped so much in getting me through the treatment.

Sleep cycle disruption and insomnia seem to be something one has to get used to on IL-2. I slept for three hours after I got to Becca's this afternoon and then from 8 to 12 pm so I guess I shouldn't be too surprised if I am wide awake at one am. Two of the lasting side effects that gets worse with each cycle are "compartment syndrome" and neuropathy. I was in a tremendous pain last night from both and sadly, Dr. Curti said that they would get better but it could take 6 months. Compartment syndrome is a leakage of fluid into the joints so that they swell and are very painful. My shoulders, especially the right, seem to be the worst. Neuropathy is an irritation of the nerves that causes tingling and pain, in my cases in my fingers and hands. These two side effects exacerbate each other so I many be in for some sleepless nights for a while.

I want to add my words of deepest appreciation to Becca's for the love and support all of you have given me throughout this ordeal. I will have my follow-scans in 6 weeks and am feeling very positive about the outcome. I will certainly keep you all posted on the results and what this journey may hold for me in the future.