Well...it's been an 'interesting' 48 hours....
Mom had improved enough for them to give her the Friday 7 am dose and that's when the wheels came off. Along with the same digestive and dehydration issues, all the known neurotoxicity symptoms came roaring in. Mom spent the next 36 hours pretty confused and disoriented, with hallucinations and anxiety. Not a fun place to be for someone as on top of things as she usually is. Phyllis, Jon and I made sure someone was always with her and we doubled up a lot of the time.
Due to her mentation state the doctors chose to keep her overnight again. As the person whose house she would be staying at (and with a scary set of stairs to negotiate) I was all in favor of that.
Since 1 or 2 this afternoon she has been becoming increasingly lucid, though there are still definite moments of la-la land and confusion.
I believe unless she takes an unforseen turn she'll be discharged at some point tomorrow (Sunday) and will be staying with us until she's back on her feet and can head home.
If you want to send her cards or anything (either for this post-cycle period or future ones) our address is:
Becca Davis
6021 SE 20th Ave
Portland OR 97202.
So Mom ended up with 9 of 14 doses in the end. Very respectable given the extreme impact it has on all the body's systems. It will be interesting to see how cycle two goes as the majority of people receive signifcantly fewer doses because the side effects come in much sooner.
One positive of the afternoon/evening. Another beautiful sunset and another nurse who hopped right on it when Phyllis came running in the room and said "Molly has to see this!". So Mom got to enjoy the beautiful moment and another physician in the room with an iphone took the pic above and sent it to her....
OH, I'm so glad to see this post. I've been very worried as you've been so faithful about posting. Lots of prayers that improvement continues and we'll be able to spend some time together soon!!
ReplyDeleteLots of love,
Susie