Starting to slow down..

Thursday mid-day update.

Mom continues to surprise us kids in how well this cycle is going even though she herself doesn't feel that good.

Let's see....since the last update they decided to hold off on her 11 pm dose but then felt good about giving her the 7 am dose. So incredibly she's 8/9 on cycle 2. I don't think any of us would have predicted that given how things went last time.

That 8th dose may end up being her last one..we'll see. Her blood pressure has been staying in the 80s/40s for a lot of the day which is (obviously) too low. As of 12:30 or so they had still been able to bring it back up to at least 85 just using boluses of saline,but they've got the big gun ordered for her and ready to use if needed. (That's the blood pressure drug that needs to be so tightly titrated that they check blood pressure every 15 minutes with it. She was on it for about 24 hours last cycle).

Her nurse was feeling a little better about her when we left but at this point she's (not surprisingly) getting very dizzy, woozy, and pale/gray if she sits up or tries to use the commode, etc. and she just feels out of it and gross. I'd be surprised if she gets the 3 pm dose, unless her blood pressure has really rebounded in the past few hours.

The increased medication she's been getting is also making her start to slur her words again and her sleep deprivation is making it hard to keep a thought going, but at the same time she's not suffering from the neurotoxicity yet so she's still all there underneath. We keep telling her that as observers of both cycles we still think she's in pretty good shape all things considered, even if she doesn't feel like it.

We'll see where they go from here. If that's all the IL-2 she receives this cycle I'd call it a real success and be pleased that she has a couple of days to try and recover before her week is up. And if they're able to give her more, yay for that as well.

Becca