Update based on 5 pm conversation....
Things so far are going surprisingly well. Mom has had 7/7 doses so far (which is certainly better than I was expecting) and (again so far) is feeling much better than she did at this time during Cycle 1.
While she's definitely seeing the blood pressure drops from time to time they've been able to bring it back up each time without using the big guns and they also seem to have gotten back on top of the nausea and chills - that hasn't been an issue for the last two doses.
At two different times today Mom was able to move over to the arm chair by the window in her room and sit there for awhile. Again, that's more than she was feeling up to last time. And she's still occasionally eating things too which is also great for her body. Both yesterday and today she had a hard boiled egg for breakfast....much better than barely getting broth down.
There are still some uncomfortable/miserable side effects and her electrolytes and other blood work is definitely showing the effect of taking IL-2 and causing her to need lots of different IVs to manage, but in the grand scheme of things (and especially considering what we were expecting for this cycle) she's doing great. All this could change after her next dose (or the one after that) if that's the one that pushes her over the edge, but for now we're appreciating it.
Of course feeling better also means she's more aware of how claustrophobic it makes her to be restricted to an alarmed bed in a small room for 5 days....
Hopefully she's able to take her 11 pm dose and succeeds in getting a little more sleep tonight.
I'll check in with her in the morning. Amy is there taking good care of her now.
Becca
Wednesday, March 9, 2011
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I like the fact that the good news seems to be better than the bad! Hope it keeps up!! Maybe her body is appreciating the fact that the treatment will work!! Lots of hugs!
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